As we came out of his rooms we sat in the van with obvious relief over our faces
and began the long drive to Christies Beach to be with our children. On the way the
news that I’d got MS began to settle down with us. I pulled the van over and looked
at my wife and said, “I don’t think that we’ve heard very good news.” She agreed.
We had no idea what MS was or what it meant to have it. All it did was put a name
to the problems that I’d been having and that there was no cure. It didn’t tell us
how to cope with it nor did we know what to expect. We were embarking on totally
new ground and a whole set of disappointments. Nothing would ever be the same.
Unfortunately, it was near Christmas and the MS society was on holidays. With all
the telephone calls we made the frustration of not knowing made for a very tough
and depressing Christmas. I am so pleased to say that the MS Society in Adelaide
has changed its operational strategy since then.
Whether it was the presence of the oncoming symptoms or the negativity that I felt
to feel my body becoming older than the years I had lived, I don't know, but the
onset of the symptoms was stark and painful.
Those early days were terrible. I felt haunted by the disease and there was no respite.
My wife was relieved that whatever it was that I had was not immediately life threatening.
Little did we know that the journey we had been embarked upon by the powers that
be was to change our whole lives – and not all for the worst.